Trying to Fill the Gap between Persons and Health Records - The MedIcona InterPersonal Health Record

Federico Cabitza, Iade Gesso

Abstract

In this paper, we discuss the concept of InterPersonal Heath Record and its role in the most recent models of health service delivery: such a health record should integrate health-related information with communication and collaboration capabilities that could allow both patients and caregivers co-produce information and knowledge toward prevention and illness treatment and management. We then present MedIcona, a full fledged demonstrator of the IPHR notion developed as free, open-source installation profile of Drupal 7. Its functionalities are aimed at enabling higher levels of user tailoring, content sharing and annotation among patients and their caregivers.

References

  1. Bannon, L. J. and Bødker, S. (1997). Constructing common information spaces. In ECSCW'97, pages 81-96, Netherlands. Kluwer Academic Publishers.
  2. Boyle, D. and Harris, M. (2009). The challenge of coproduction. Technical report, NESTA and new economics foundation, London, UK.
  3. Cabitza, F. (2012). On the attitudes of GPs toward novel features of their next EPRs. In Quality of life through quality of information, volume 180 of Studies in health technology and informatics, pages 911-916.
  4. Cabitza, F., et al., (2013). ”Worth a thousand fields”. Arguing for a visual turn in computer-supported general practice. In eHealth 2013: Proceedings of the IADIS International Conference on eHealth, 24- 26 July, 2013 Prague, Czech Republic, Computer Science and Information Systems. IADIS Press, pp. 95102.
  5. Cabitza, F., et al., (2014). User-driven Prioritization of Features for a Prospective InterPersonal Health Record: perceptions from the Italian context. Comput Biol Med. Forthcoming.
  6. Cahn, E. S. (2000). No more throw-away people: the coproduction imperative. Edgar Cahn, 2000.
  7. Carroll, J. M. (2013). Co-production scenarios for mobile time banking. In End-User Development, 7897: 137- 152. Springer, Berlin, D.
  8. Coulter, A. and Ellins, J. (2006). Patient-focused interventions: a review of evidence. Technical report, The Health Foundation, London, UK.
  9. Day, K. and Gu, Y. (2012). Influencing factors for adopting personal health record (PHR). Stud Health Technol Inform, 178:39-44.
  10. Dunbrack, L. A. (2011). Vendor assessment: When will PHR platforms gain consumer acceptance? Vendor Assessment HI227550, IDC Health Insights, Framingham, MA, USA.
  11. Fisher, S. (1987). Meeting between experts: An approach to sharing ideas in medical consultations. Sociology of Health & Illness, 9(2):211-213.
  12. Greenhalgh, T., et al., (2010). Adoption, non-adoption, and abandonment of a personal electronic health record: case study of HealthSpace. BMJ, 341(1):c5814- c5814.
  13. Greenhalgh, T., et al., (2009). Tensions and paradoxes in electronic patient record research: a systematic literature review using the meta-narrative method. The Milbank Quarterly, 87(4):729-788.
  14. Greenhalgh, T., et al., (2008). Patients' attitudes to the summary care record and HealthSpace: qualitative study. BMJ, 336(7656):1290-1295.
  15. Harrison et al., (2007). Unintended Consequences of Information Technologies in Health Care - An Interactive Sociotechnical Analysis. JAMIA 14, 542-549.
  16. Heeks, R., et al., (1999). Why health care information systems succeed or fail. Technical report, Institute for Development Policy and Management (IDPM), Manchester, UK.
  17. Hoerbst, A., et al., (2010). Attitudes and behaviors related to the introduction of electronic health records among austrian and german citizens. IJMI, 79(2):81-89.
  18. Kahn, J. S., et al., (2009). What it takes: Characteristics of the ideal personal health record. Health Affairs, 28(2):369-376.
  19. Karsh, B.-T., et al., (2010). Health information technology: fallacies and sober realities. JAMIA, 17(6):617-623.
  20. Majeed, A., et al., (2009). The impact of eHealth on the quality and safety of healthcare. In Communications Infrastructure. Systems and Applications in Europe, 16:204-204. Springer, Berlin, D.
  21. Pagliari, C., et al., (2007). Potential of electronic personal health records. BMJ, 335(7615):330-333.
  22. Realpe, A. and Wallace, L. M. (2010). What is coproduction? Technical report, The Health Foundation, Coventry University, Coventry, UK.
  23. Singleton, P., et al., (2009). Critical issues for electronic health records: Considerations from an expert workshop. Technical report, Nuffield Trust, UK.
  24. Tang, P. C., et al., (2006). Personal health records: Definitions, benefits, and strategies for overcoming barriers to adoption. JAMIA, 13(2):121-126.
  25. Westin, A. F., et al., (2008). Americans overwhelmingly believe electronic personal health records could improve their health. Technical report, Markle Foundation.
Download


Paper Citation


in Harvard Style

Cabitza F. and Gesso I. (2014). Trying to Fill the Gap between Persons and Health Records - The MedIcona InterPersonal Health Record . In Proceedings of the International Conference on Health Informatics - Volume 1: HEALTHINF, (BIOSTEC 2014) ISBN 978-989-758-010-9, pages 222-229. DOI: 10.5220/0004747402220229


in Bibtex Style

@conference{healthinf14,
author={Federico Cabitza and Iade Gesso},
title={Trying to Fill the Gap between Persons and Health Records - The MedIcona InterPersonal Health Record},
booktitle={Proceedings of the International Conference on Health Informatics - Volume 1: HEALTHINF, (BIOSTEC 2014)},
year={2014},
pages={222-229},
publisher={SciTePress},
organization={INSTICC},
doi={10.5220/0004747402220229},
isbn={978-989-758-010-9},
}


in EndNote Style

TY - CONF
JO - Proceedings of the International Conference on Health Informatics - Volume 1: HEALTHINF, (BIOSTEC 2014)
TI - Trying to Fill the Gap between Persons and Health Records - The MedIcona InterPersonal Health Record
SN - 978-989-758-010-9
AU - Cabitza F.
AU - Gesso I.
PY - 2014
SP - 222
EP - 229
DO - 10.5220/0004747402220229