Research Ethics and Public Trust, Preconditions for Continued Growth of Internet Mediated Research - Public Confidence in Internet Mediate Research

Ansgar Koene, Elvira Perez, Christopher J. Carter, Ramona Statache, Svenja Adolphs, Claire O'Malley, Tom Rodden, Derek McAuley

Abstract

In this paper we argue for the position that responsible safeguards for privacy and ethical treatment of human data are of vital importance to retain the public confidence and trust that is necessary for the development and future success of internet mediated research (IMR). We support our position based on the high level of popular and media attention that is currently directed at IMR, which in combination with the relative uncertainties that still exist around the ethics of various IMR methods, raises the risk that IMR might succumb to a public backlash of similar proportions to the controversy that hit genetically modified (GM) crops in Europe. Based on the lessons that came out of the GM crops controversy we discuss the ethics requirements and challenges that must be met in order to retain the public trust in IMR. We end our argument by briefly reviewing a couple of examples of “privacy protecting architectures” that are being developed for IMR.

References

  1. Andrews, L., 2013. I Know Who You Are and I Saw What You Did: Social Networks and the Death of Privacy. Free Press, New York, NY, USA.
  2. Barbaro, M. and Zeller, T., 2006. A face is exposed for AOL searcher no. 4417749, New York Times, August 9, 2006.
  3. BBC News, 2014. OKCupid experiments with 'bad'dating matches. BBC News, 29 July 2014.
  4. Biotechnology and the European Public Concerted Action Group, 1998. Europe ambivalent on biotechnology. Nature 387, 845-847.
  5. Booth, R., 2014. Facebook reveals news feed experiment to control emotions. The Guardian, Mon 30 June, 2014.
  6. British Psychological Society, 2013. Ethics Guidelines for Internet-mediated Research. INF206/1.2013.
  7. Carr, S., Levidow, L., 2000. Exploring the Links Between Science, Risk, Uncertainty, and Ethics in Regulatory Controversies About Genetically Modified Crops. Journal of Agricultural and Environmental Ethics, 12, 1, 29-39.
  8. Cooper, R.G., Kleinschmidt, E.J., 1987. Success factors in new pro- duct innovation. Industrial Marketing Management 16, 215-233.
  9. Dragland, Å., 2013; http://www.sintef.no/home/PressRoom/Research-News/Big-Data--for-better-or-worse/ Dwyer, L., Mellor, R., 1991. New product process activities and project outcomes. R&D Management 21, 31-42.
  10. Frewer, L., Lassen, J., Kettlitz, B., Scholderer, J., Beekman, V., Berdal, K.G., 2004. Societal aspects of genetically modified foods. Food and Chemical Toxicology, 42, 1181-1193.
  11. Hutton, L., Andrews, S., Henderson, T., 2012. An architecture for ethical and privacy-sensitive social network experiments. Proceedings of the ACM SIGMETRICS. PADE'12.
  12. Independent Expert Advisory Group, 2014. A World that Counts, Mobilising the data revolution for sustainable development. Report prepared at the request of the UN Secretary-General by the IEAG on a Data Revolution for Sustainable Development.
  13. Jayson, S., 2014, Social media research raises privacy and ethics issues. USA Today, March 12, 2014.
  14. Kramer, A.D.I., Guillory, J.E., Hanckock, J.T., 2014. Experimental evidence of massive-scale emotional contagion through social networks. PNAS 111, 24, 8788-8790.
  15. Kroon, U., 2013. Ma3tch: Privacy and Knowledge. IEEE Interational Conference on Big Data. 23-31.
  16. Miles, S., Frewer, L.J., 2001. Investigating specific concerns about different food hazards-higher and lower order attributes. Food Quality and Preference 12, 47-61.
  17. Mortier, R., Lodge, T., Goulding, J., Skatova, A., Houghton, Crowcroft, J., Madhavapeddy A., 2013. Dataware, A Personal Data Architecture. Digital Economy 2013: Open Digital.
  18. Narayanan, A., Shmatikov, V., 2009. De-anonymizing social networks. Proc. IEEE Symposium on Security and Privacy, May 2009. doi:10.1109/SP.2009.22.
  19. Sutcliffe, H., 2011. A report on Responsibe Research & Innovation. Matter. Obtained through the internet http://ec.europa.eu.
  20. Wheelwright, S.C., Clark, K.B., 1992. Competing through development capability in a manufacturing-based organization. Business Horizons 35, 29-43.
  21. Wilsdon, J., 2014. Evidence-basaed Union? A new alliance for science advice in Europe. The Guardian, Mon 23 June, 2014.
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Paper Citation


in Harvard Style

Koene A., Perez E., J. Carter C., Statache R., Adolphs S., O'Malley C., Rodden T. and McAuley D. (2015). Research Ethics and Public Trust, Preconditions for Continued Growth of Internet Mediated Research - Public Confidence in Internet Mediate Research . In Proceedings of the 1st International Conference on Information Systems Security and Privacy - Volume 1: ICISSP, ISBN 978-989-758-081-9, pages 163-168. DOI: 10.5220/0005331501630168


in Bibtex Style

@conference{icissp15,
author={Ansgar Koene and Elvira Perez and Christopher J. Carter and Ramona Statache and Svenja Adolphs and Claire O'Malley and Tom Rodden and Derek McAuley},
title={Research Ethics and Public Trust, Preconditions for Continued Growth of Internet Mediated Research - Public Confidence in Internet Mediate Research},
booktitle={Proceedings of the 1st International Conference on Information Systems Security and Privacy - Volume 1: ICISSP,},
year={2015},
pages={163-168},
publisher={SciTePress},
organization={INSTICC},
doi={10.5220/0005331501630168},
isbn={978-989-758-081-9},
}


in EndNote Style

TY - CONF
JO - Proceedings of the 1st International Conference on Information Systems Security and Privacy - Volume 1: ICISSP,
TI - Research Ethics and Public Trust, Preconditions for Continued Growth of Internet Mediated Research - Public Confidence in Internet Mediate Research
SN - 978-989-758-081-9
AU - Koene A.
AU - Perez E.
AU - J. Carter C.
AU - Statache R.
AU - Adolphs S.
AU - O'Malley C.
AU - Rodden T.
AU - McAuley D.
PY - 2015
SP - 163
EP - 168
DO - 10.5220/0005331501630168