ReMindMe: Agent-based Support for Self-disclosure of Personal Memories in People with Alzheimer’s Disease

Marieke M. M. Peeters

Abstract

This paper presents work on the design rationale and architecture of ReMindMe. ReMindMe aims to provide agent-based support for people with Alzheimer’s disease and their social environment by playing music with a strong personal meaning to the patient so as to activate personal memory recall. ReMindMe stimulates reminiscence and self-disclosure of personal memories. Through long-term interaction with the patient, the ReMindMe agent gradually constructs a knowledge base containing information about the patient’s life stories. The agent uses this knowledge base to engage in mutual conversational self-disclosure about personal memories so as to stimulate reminiscence. Future research aims to develop and refine ReMindMe through coactive design and testing ‘in the wild’, i.e. at dementia care facilities. The envisioned outcome of the project is a usable and effective proof-of-concept of a conversational agent for the dementia care practice.

References

  1. Alzheimer's Association (2015). Dementia - Signs, Symptoms, Causes, Tests, Treatment, Care.
  2. Banerjee, S., Samsi, K., Petrie, C. D., Alvir, J., Treglia, M., Schwam, E. M., and del Valle, M. (2009). What do we know about quality of life in dementia? A review of the emerging evidence on the predictive and explanatory value of disease specific measures of health related quality of life in people with dementia. International Journal of Geriatric Psychiatry, 24(1):15-24.
  3. Barak, A. and Gluck-Ofri, O. (2007). Degree and Reciprocity of Self-Disclosure in Online Forums. CyberPsychology & Behavior, 10(3):407-417.
  4. Beer, J. M., Smarr, C.-A., Chen, T. L., Prakash, A., Mitzner, T. L., Kemp, C. C., and Rogers, W. A. (2012). The domesticated robot: design guidelines for assisting older adults to age in place. In Proceedings of the annual ACM/IEEE international conference on HumanRobot Interaction, pages 335-342. ACM.
  5. Bernsen, N. O., Dybkjaer, H., and Dybkjaer, L. (1994). Wizard of oz prototyping: How and when. Proc. CCI Working Papers Cognit. Sci./HCI, Roskilde, Denmark.
  6. Bickmore, T. and Schulman, D. (2012). Empirical validation of an accommodation theory-based model of user-agent relationship. In Intelligent Virtual Agents, pages 390-403. Springer.
  7. Bickmore, T., Schulman, D., and Yin, L. (2009). Engagement vs. deceit: Virtual humans with human autobiographies. In Proceedings of the International Conference on Intelligent Virtual Agents, pages 6-19. Springer.
  8. Breazeal, C. (2004). Social Interactions in HRI: The Robot View. IEEE Transactions on Systems, Man and Cybernetics, 34(2):181-186.
  9. Cassell, J., Gill, A. J., and Tepper, P. A. (2007). Coordination in conversation and rapport. In Proceedings of the workshop on Embodied Language Processing, pages 41-50. Association for Computational Linguistics.
  10. Chan, D. K.-S. and Cheng, G. H.-L. (2004). A Comparison of Offline and Online Friendship Qualities at Different Stages of Relationship Development. Journal of Social and Personal Relationships, 21(3):305-320.
  11. Clark, C. C. and Warren, J. D. (2015). Music, memory and mechanisms in Alzheimers disease. Brain, 138(8):2122-2125.
  12. Collins, N. L. and Miller, L. C. (1994). Self-disclosure and liking: a meta-analytic review. Psychological bulletin, 116(3):457.
  13. Cooney, A., Hunter, A., Murphy, K., Casey, D., Devane, D., Smyth, S., Dempsey, L., Murphy, E., Jordan, F., and O'Shea, E. (2014). 'Seeing me through my memories': a grounded theory study on using reminiscence with people with dementia living in long-term care. Journal of Clinical Nursing, 23(23-24):3564-3574.
  14. Cuddy, L. L. and Duffin, J. (2005). Music, memory, and Alzheimer's disease: is music recognition spared in dementia, and how can it be assessed? Medical Hypotheses, 64(2):229-235.
  15. Cuddy, L. L., Sikka, R., and Vanstone, A. (2015). Preservation of musical memory and engagement in healthy aging and Alzheimer's disease: Musical memory in Alzheimer's disease. Annals of the New York Academy of Sciences, 1337(1):223-231.
  16. Derlega, V. J., Winstead, B. A., and Greene, K. (2008). Derlega et al. Self-disclosure and starting a close relationship. In Sprecher, S., Wenzel, A., and Harvey, J., editors, Handbook of relationship initiation, pages 153- 174. Psychology Press, New York, NY, US.
  17. Dindia, K., Allen, M., Preiss, R., Gayle, B., and Burrell, N. (2002). Self-disclosure research: Knowledge through meta-analysis. Interpersonal communication research: Advances through meta-analysis, pages 169-185.
  18. Droës, R.-M., Boelens-van der Knoop, E. C. C., Bos, J., Meihuizen, L., Ettema, T. P., Gerritsen, D., Hoogeveen, F., De Lange, J., and Scholzel-Dorenbos, C. (2006). Quality of life in dementia in perspective - An explorative study of variations in opinions among people with dementia and their professional caregivers, and in literature. Dementia, 5(4):533-558.
  19. Fiske, A. P. (1992). The four elementary forms of sociality: Framework for a unified theory of social relations. Psychological Review, 99(4):689-723.
  20. Friedman, B., Kahn, Jr., P., Borning, A., and Huldtgren, A. (2013). Value sensitive design and information systems. Early engagement and new technologies: Opening up the laboratory, pages 55-95.
  21. Greene, K., Derlega, V. J., and Mathews, A. (2006). Self Disclosure in Personal Relationships. In The Cambridge Handbook of Personal Relationships, pages 409-427. Cambridge University Press, New York, NY, US.
  22. Haight, B. K., Gibson, F., and Michel, Y. (2006). The Northern Ireland life review/life storybook project for people with dementia. Alzheimer's & Dementia, 2(1):56-58.
  23. Jacobsen, J.-H., Stelzer, J., Fritz, T. H., Chtelat, G., La Joie, R., and Turner, R. (2015). Why musical memory can be preserved in advanced Alzheimers disease. Brain, 138(8):2438-2450.
  24. Janata, P., Tomic, S. T., and Rakowski, S. K. (2007). Characterisation of music-evoked autobiographical memories. Memory, 15(8):845-860.
  25. Koopmans, R., Olde Rikkert, M., and Zuidema, S. (2015). Medicamenteuze behandeling van dementie. In Meer kwaliteit van leven - Integratieve persoonsgerichte dementiezorg, pages 47-63. Diagnosis Uitgevers, Leusden, the Netherlands.
  26. Lawrence, V., Fossey, J., Ballard, C., Moniz-Cook, E., and Murray, J. (2012). Improving quality of life for people with dementia in care homes: making psychosocial interventions work. The British Journal of Psychiatry, 201(5):344-351.
  27. McDermott, O., Orrell, M., and Ridder, H. M. (2014). The importance of music for people with dementia: the perspectives of people with dementia, family carers, staff and music therapists. Aging & Mental Health, 18(6):706-716.
  28. Neerincx, M. A. (2011). Situated cognitive engineering for crew support in space. Personal and Ubiquitous Computing, 15(5):445-456.
  29. Neerincx, M. A. and Lindenberg, J. (2008). Situated cognitive engineering for complex task environments. In Naturalistic Decision Making and Macrocognition, pages 373-390. Ashgate.
  30. Norman-Haignere, S., Kanwisher, N., and McDermott, J. (2015). Distinct Cortical Pathways for Music and Speech Revealed by Hypothesis-Free Voxel Decomposition. Neuron, 88(6):1281-1296.
  31. Noy, N. and McGuinness, D. (2001). Ontology Development 101: A guide to creating your first ontology. Technical report, Knowledge Systems Laboratory, Stanford University.
  32. Pecune, F., Ochs, M., and Pelachaud, C. (2013). A Formal Model of Social Relations for Artificial Companions. In Proceedings of The European Workshop on MultiAgent Systems (EUMAS).
  33. Pecune, F., Ochs, M., and Pelachaud, C. (2014). A Cognitive Model of Social Relations for Artificial Companions. In Intelligent Virtual Agents, pages 325-328. Springer.
  34. Peeters, M. M. M. (2014). Personalized Educational Games - An agent-based architecture for automated scenariobased training. PhD thesis, Utrecht University.
  35. Peeters, M. M. M., van den Bosch, K., Meyer, J.-J. C., and Neerincx, M. A. (2012). Situated Cognitive Engineering: the Requirements and Design of Directed Scenario-based Training. In Miller, L. and Roncagliolo, S., editors, Proceedings of the International Conference on Advances in Computer-Human Interaction, pages 266-272. Xpert Publishing Services.
  36. Peeters, M. M. M., van den Bosch, K., Meyer, J.-J. C., and Neerincx, M. A. (2014a). The Design and Effect of Automated Directions During Scenario-based Training. Computers & Education, 70:173-183.
  37. Peeters, M. M. M., van den Bosch, K., Neerincx, M. A., and Meyer, J.-J. C. (2014b). An Ontology for Automated Scenario-based Training. International Journal of Technology Enhanced Learning, 6(3):195-211.
  38. Planalp, S. and Benson, A. (1992). Friends' and acquaintances' conversations I: Perceived differences. Journal of Social and Personal Relationships, 9(4):483- 506.
  39. Richards, D. and Bransky, K. (2014). ForgetMeNot: What and how users expect intelligent virtual agents to recall and forget personal conversational content. International Journal of Human-Computer Studies, 72(5):460-476.
  40. Riley, P., Alm, N., and Newell, A. (2009). An interactive tool to promote musical creativity in people with dementia. Computers in Human Behavior, 25(3):599- 608.
  41. Sarkamo, T., Tervaniemi, M., Laitinen, S., Numminen, A., Kurki, M., Johnson, J. K., and Rantanen, P. (2014). Cognitive, Emotional, and Social Benefits of Regular Musical Activities in Early Dementia: Randomized Controlled Study. The Gerontologist, 54(4):634-650.
  42. Schulkind, M. D. and Woldorf, G. M. (2005). Emotional organization of autobiographical memory. Memory & cognition, 33(6):1025-1035.
  43. Simmons-Stern, N. R., Deason, R. G., Brandler, B. J., Frustace, B. S., O'Connor, M. K., Ally, B. A., and Budson, A. E. (2012). Music-based memory enhancement in Alzheimer's Disease: Promise and limitations. Neuropsychologia, 50(14):3295-3303.
  44. Sixsmith, A. and Gibson, G. (2007). Music and the wellbeing of people with dementia. Ageing and Society, 27(01):127.
  45. Subramaniam, P. and Woods, B. (2012). The impact of individual reminiscence therapy for people with dementia: systematic review. Expert Review of Neurotherapeutics, 12(5):545-555.
  46. Subramaniam, P., Woods, B., and Whitaker, C. (2014). Life review and life story books for people with mild to moderate dementia: a randomised controlled trial. Aging & Mental Health, 18(3):363-375.
  47. Thieme, A., Wallace, J., Thomas, J., Le Chen, K., Krämer, N., and Olivier, P. (2011). Lovers' box: Designing for reflection within romantic relationships. International Journal of Human-Computer Studies, 69(5):283-297.
  48. Ueda, T., Suzukamo, Y., Sato, M., and Izumi, S.-I. (2013). Effects of music therapy on behavioral and psychological symptoms of dementia: A systematic review and meta-analysis. Ageing Research Reviews, 12(2):628- 641.
  49. van Gennip, I. E., W. Pasman, H. R., Oosterveld-Vlug, M. G., Willems, D. L., and Onwuteaka-Philipsen, B. D. (2014). How Dementia Affects Personal Dignity: A Qualitative Study on the Perspective of Individuals With Mild to Moderate Dementia. The Journals of Gerontology Series B: Psychological Sciences and Social Sciences, pages 1-11.
  50. Vasionyte, I. and Madison, G. (2013). Musical intervention for patients with dementia: a meta-analysis. Journal of Clinical Nursing, 22(9-10):1203-1216.
  51. Verhey, F. (2015). Klachten en verschijnselen van dementie. In Meer kwaliteit van leven - Integratieve persoonsgerichte dementiezorg, pages 163-184. Diagnosis Uitgevers, Leusden, the Netherlands.
  52. Wallace, J., Thieme, A., Wood, G., Schofield, G., and Olivier, P. (2012). Enabling self, intimacy and a sense of home in dementia: an enquiry into design in a hospital setting. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems, pages 2629-2638. ACM.
  53. World Health Organization (2015). WHO - Dementia.
Download


Paper Citation


in Harvard Style

Peeters M. (2016). ReMindMe: Agent-based Support for Self-disclosure of Personal Memories in People with Alzheimer’s Disease . In Proceedings of the International Conference on Information and Communication Technologies for Ageing Well and e-Health - Volume 1: ICT4AWE, (ICT4AGEINGWELL 2016) ISBN 978-989-758-180-9, pages 61-66. DOI: 10.5220/0005913000610066


in Bibtex Style

@conference{ict4awe16,
author={Marieke M. M. Peeters},
title={ReMindMe: Agent-based Support for Self-disclosure of Personal Memories in People with Alzheimer’s Disease},
booktitle={Proceedings of the International Conference on Information and Communication Technologies for Ageing Well and e-Health - Volume 1: ICT4AWE, (ICT4AGEINGWELL 2016)},
year={2016},
pages={61-66},
publisher={SciTePress},
organization={INSTICC},
doi={10.5220/0005913000610066},
isbn={978-989-758-180-9},
}


in EndNote Style

TY - CONF
JO - Proceedings of the International Conference on Information and Communication Technologies for Ageing Well and e-Health - Volume 1: ICT4AWE, (ICT4AGEINGWELL 2016)
TI - ReMindMe: Agent-based Support for Self-disclosure of Personal Memories in People with Alzheimer’s Disease
SN - 978-989-758-180-9
AU - Peeters M.
PY - 2016
SP - 61
EP - 66
DO - 10.5220/0005913000610066