Sharing of Big Data in Healthcare: Public Opinion, Trust, and Privacy Considerations for Health Informatics Researchers

Laura Moss, Martin Shaw, Ian Piper, Christopher Hawthorne, John Kinsella

2017

Abstract

Advances in technology has transformed clinical medicine; electronic patient records routinely store clinical notes, internet-enabled mobile apps support self-management of chronic diseases, point-of-care testing enables laboratory tests to be performed outside of hospital environments, patient treatment can be delivered over wide geographic areas and wireless sensor networks are able to collect and send physiological data. Increasingly, this technology leads to the development of large databases of sensitive electronic patient information. There is public interest into the secondary use of this data; many concerns are voiced about the involvement of private companies and the security and privacy of this data, but at the same time, these databases present a valuable source of clinical information which can drive health informatics and clinical research, leading to improved patient treatment. In this position paper, we argue that for health informatics projects to be successful, public concerns over the secondary use of patient data need to be addressed in the design and implementation of the technology and conduct of the research project.

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Paper Citation


in Harvard Style

Moss L., Shaw M., Piper I., Hawthorne C. and Kinsella J. (2017). Sharing of Big Data in Healthcare: Public Opinion, Trust, and Privacy Considerations for Health Informatics Researchers . In Proceedings of the 10th International Joint Conference on Biomedical Engineering Systems and Technologies - Volume 5: HEALTHINF, (BIOSTEC 2017) ISBN 978-989-758-213-4, pages 463-468. DOI: 10.5220/0006251504630468


in Bibtex Style

@conference{healthinf17,
author={Laura Moss and Martin Shaw and Ian Piper and Christopher Hawthorne and John Kinsella},
title={Sharing of Big Data in Healthcare: Public Opinion, Trust, and Privacy Considerations for Health Informatics Researchers},
booktitle={Proceedings of the 10th International Joint Conference on Biomedical Engineering Systems and Technologies - Volume 5: HEALTHINF, (BIOSTEC 2017)},
year={2017},
pages={463-468},
publisher={SciTePress},
organization={INSTICC},
doi={10.5220/0006251504630468},
isbn={978-989-758-213-4},
}


in EndNote Style

TY - CONF
JO - Proceedings of the 10th International Joint Conference on Biomedical Engineering Systems and Technologies - Volume 5: HEALTHINF, (BIOSTEC 2017)
TI - Sharing of Big Data in Healthcare: Public Opinion, Trust, and Privacy Considerations for Health Informatics Researchers
SN - 978-989-758-213-4
AU - Moss L.
AU - Shaw M.
AU - Piper I.
AU - Hawthorne C.
AU - Kinsella J.
PY - 2017
SP - 463
EP - 468
DO - 10.5220/0006251504630468