IT DEVELOPMENT AND MANAGEMENT OF A LIVE E-RESEARCH SYSTEM - Experiences with the Australian Schizophrenia Research Bank

D. Paul; F. A. Henskens; C. M. Loughland; J. Bridge; K. McCabe; V. J. Carr; S. V. Catts; A. Jablensky; P. T. Michie; B. J. Mowry; C. Pantelis; U. Schall; R. J. Scott

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Paper

IT DEVELOPMENT AND MANAGEMENT OF A LIVE E-RESEARCH SYSTEM - Experiences with the Australian Schizophrenia Research Bank

Topics: Design and Development Methodologies for Healthcare IT; Evaluation and Use of Healthcare IT

In Proceedings of the International Conference on Health Informatics - Volume 0BIOSTEC, 125-130, 2012 , Vilamoura, Algarve, Portugal

Authors: D. Paul ¹ ; F. A. Henskens ¹ ; C. M. Loughland ¹ ; J. Bridge ¹ ; K. McCabe ¹ ; V. J. Carr ² ; S. V. Catts ³ ; A. Jablensky ⁴ ; P. T. Michie ¹ ; B. J. Mowry ³ ; C. Pantelis ⁵ ; U. Schall ¹ and R. J. Scott ¹

Affiliations: ¹ Schizophrenia Research Institute and University of Newcastle, Australia ; ² Schizophrenia Research Institute and University of New South Wales, Australia ; ³ Schizophrenia Research Institute and University of Queensland, Australia ; ⁴ Schizophrenia Research Institute and University of Western Australia, Australia ; ⁵ Schizophrenia Research Institute and University of Melbourne, Australia

Keyword(s): eResearch, Schizophrenia, ASRB.

Related Ontology Subjects/Areas/Topics: Biomedical Engineering ; Design and Development Methodologies for Healthcare IT ; Evaluation and Use of Healthcare IT ; Health Information Systems

Abstract: The Australian Schizophrenia Research Bank (ASRB) is a nationwide eResearch project that aims to facilitate scientific research into one of the most perplexing and challenging mental disorders facing researchers today. The system is accessed through a Web portal and, subject to ethics approvals, allows researchers access to subsets of the clinical, neuropsychological, and genetic data collected by the project. This paper describes the day-to-day experiences in the on-going development and management of the ASRB IT systems, including current practices, lessons learned, and areas where improvement is required.

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Paper citation in several formats:

Paul, D.; A. Henskens, F.; M. Loughland, C.; Bridge, J.; McCabe, K.; J. Carr, V.; V. Catts, S.; Jablensky, A.; T. Michie, P.; J. Mowry, B.; Pantelis, C.; Schall, U. and J. Scott, R. (2012). IT DEVELOPMENT AND MANAGEMENT OF A LIVE E-RESEARCH SYSTEM - Experiences with the Australian Schizophrenia Research Bank. In Proceedings of the International Conference on Health Informatics (BIOSTEC 2012) - HEALTHINF; ISBN 978-989-8425-88-1; ISSN 2184-4305, SciTePress, pages 125-130. DOI: 10.5220/0003705801250130

@conference{healthinf12,
author={D. Paul. and F. {A. Henskens}. and C. {M. Loughland}. and J. Bridge. and K. McCabe. and V. {J. Carr}. and S. {V. Catts}. and A. Jablensky. and P. {T. Michie}. and B. {J. Mowry}. and C. Pantelis. and U. Schall. and R. {J. Scott}.},
title={IT DEVELOPMENT AND MANAGEMENT OF A LIVE E-RESEARCH SYSTEM - Experiences with the Australian Schizophrenia Research Bank},
booktitle={Proceedings of the International Conference on Health Informatics (BIOSTEC 2012) - HEALTHINF},
year={2012},
pages={125-130},
publisher={SciTePress},
organization={INSTICC},
doi={10.5220/0003705801250130},
isbn={978-989-8425-88-1},
issn={2184-4305},
}

TY - CONF

JO - Proceedings of the International Conference on Health Informatics (BIOSTEC 2012) - HEALTHINF
TI - IT DEVELOPMENT AND MANAGEMENT OF A LIVE E-RESEARCH SYSTEM - Experiences with the Australian Schizophrenia Research Bank
SN - 978-989-8425-88-1
IS - 2184-4305
AU - Paul, D.
AU - A. Henskens, F.
AU - M. Loughland, C.
AU - Bridge, J.
AU - McCabe, K.
AU - J. Carr, V.
AU - V. Catts, S.
AU - Jablensky, A.
AU - T. Michie, P.
AU - J. Mowry, B.
AU - Pantelis, C.
AU - Schall, U.
AU - J. Scott, R.
PY - 2012
SP - 125
EP - 130
DO - 10.5220/0003705801250130
PB - SciTePress