Technology as an Area of Conflict between Autonomy and Safety - Acceptance and Attitudes of Family Caregivers in Regard to Technical Assistance to Ensure Safe Areas of Movement for People with Dementia Diseases

Irene Müller, Matthias Mertin, Rolf M.A.

2017

Abstract

Family caregivers take on a responsible task when caring for people with dementia showing the phenomenon of wandering. Technical systems like Global Positioning Systems (GPS) could support them in this respect. So far, there are no empirical studies in the German-speaking area that illustrate the attitude and acceptance of family caregivers on this subject. The subjective perspective of the family caregivers has now been ascertained after a systematic literature review and the selection of a qualitative research design based on n=14 problem-centered interviews. As a result, family caregivers endorse the use of technical devices to ensure safe areas of movement for people with dementia in cases where the benefit is recognizable and the handling is uncomplicated. Ethical questions are a major challenge for family caregivers as they have to make decisions for people with dementia that conflicts with autonomy and safety.

References

  1. AAL Deutschland (2016) Ambient Assisted Living Deutschland. Available at: http://www.aaldeutschland.de/ [Accessed: 04 May 2016].
  2. Algase D. L., Moore, H. D., Vandeweerd, C. and GavinDreschnack, D. J. (2007) Mapping the maze of terms and definitions in dementia-related wandering. Aging and Mental Health, 11(6), 686-698.
  3. BDSG (1990) Bundesdatenschutzgesetz. Available at: https://www.gesetze-im-internet.de/bdsg_1990/ [Accessed: 05 April 2016].
  4. Bunn, F., Goodman, C., Sworn, K., Rait, G., Brayne, C., Robinson, L., McNeilly, E. and Iliffe, S. (2012) Psychosocial Factors that shape patient and carer experiences of dementa diagnoses and treatment: a systematic review of qualitative studies. Available at: http://journals.plos.org/plosmedicine/article?id=10.137 1/journal.pmed.1001331 [Accessed: 30 April 2016].
  5. Claßen, K. (2012) Zur Psychologie von Technikakzeptanz im höheren Lebensalter: Die Rolle von Technikgenerationen. Dissertation. Available at: http://archiv.ub.uniheidelberg.de/volltextserver/14295/ [Accessed: 15 October 2015].
  6. Davis, F.D. (1989). Perceived Usefulness, Perceived Ease of Use, and User Acceptance of Information Technology. MIS Quarterly, 13(3), 319-340.
  7. Davis, F.D. (1991). User acceptance of information technology: system characteristics, user perceptions and behavioral impacts. International Journal of ManMachine Studies, 38(3), 475-487.
  8. DGPs. Deutsche Gesellschaft für Psychologie (2004) Ethische Richtlinien der DGPs und des BDP. Available at: http://www.dgps.de/index.php?id=85 [Accessed: 10 April 2016].
  9. Dietz, D. (2012). Methodischer Vergleich zweier Messverfahren zur objektiven Erfassung des SchlafWach-Rhythmus (Sense Wear Pro 3 vs. Actiwatch AW7). [pdf]. http://www.qucosa.de/fileadmin/data/qucosa/documen ts/10026/Methodischer%20Vergleich%20...%20David %20Dietz.pdf (Abruf: 14.06.2016).
  10. van Doorn, C., Gruber-Baldinie, A.L., Zimmerman, S., Hebel, J.R., Port, C.L., Baumgarten, M., Quinn, C.C., Taler, G., May, C. and Magaziner, J. (2003) Dementia as a risk factor for falls and fall injuries among nursing home residents. Journal of the American Geriatrics Society, 51(9), 1213-1218.
  11. Faucounau, V., Riguet, M., Orvoen, G., Lacombe, A., Rialle, V., Extra, J. and Rigaud, A.-S. (2009). Electronic tracking system and wandering in Alzheimers disease: A case study. Annals of Pysicaland Rehabilitation Medicine, 52(7-8), 579-587.
  12. Furuta, N., Mimura, M., Isono, H., Sugai, Y. and Kamijima, K. (2004) Characteristics of behavioral and psychological symptoms in the oldest patients with Alzheimer's disease. Psychogeriatrics, 4(1), 11-16.
  13. Graham, M. E. (2015) From wandering to wayfaring: Reconsidering movement in people with dementia in long-term care. Dementia, 0(0), 1-18.
  14. Halek, M. and Bartholomeyczik, S. (2012) Description of the behavior of wandering in people with dementia living in nursing homes - A review of the literature. Scandinavian Journal of Caring Sciences, 26(2), 404- 413.
  15. Heeg, S., Heusel, C., Kühnle, E., Külz, S., LützauHohlbein, von H., Mollenkopf, H., Oswald, F., Pieper, R., Rienhoff, O. and Schweizer, R. (2007) Technische Unterstützung bei Demenz. Bern: Huber.
  16. Helfferich, C. (2011) Die Qualität qualitativer Daten. Manual für die Durchführung qualitativer Interviews. 4th ed. Wiesbaden: VS Verlag.
  17. Houston, A. M., Brown, L. M., Rowe, M. A. and Barnett, S. D. (2011) The informal caregivers perception of wandering. American Journal of Alzheimers Disease and Other Dementias. 26(8), 616-622.
  18. International Classification of Disease (2016) ICD-10- GM-2016. Available at: http://www.icdcode.de/icd/code/F00.-*.html [Accessed: 11 January 2016].
  19. Joling, K.J., van Marwijk, H.W.J., van der Horst, H.E., Scheltens, P., van de Ven, P.M., Appels, B.A. and van Hout, H.P.J. (2012) Effectiveness of Family Meetings for Family Caregivers on Delaying Time to Nursing Home Placement of Dementia Patients: A Randomized Trial. PLoS ONE, 7(8), e42145.
  20. Kitwood, T. (2013) Demenz - der Person-zentrierte Ansatz im Umgang mit verwirrten Menschen. 6th ed. Bern: Huber.
  21. Lord, S. R., Sherrington, C., Menz, H. B. and Close, J. C. T. (2007) Falls in older people: risk factors and strategies for prevention. 2nd Ed. Cambridge: Cambridge University Press.
  22. Mahoney, E.L. and Mahoney, D.F. (2010) Acceptance of wearable technology by people with Alzheimers disease: issues and accomodations. American Journal of Alzheimers Disease and Other Dementias. 25(6), 527-531.
  23. Manzeschke, A., Weber, K., Rother, E. and Fangerau, H. (2013) Ethische Fragen im Bereich Altersgerechter Assistenzsysteme. Ergebnisse der Studie. Available at: http://www.ethikdiskurs.de/forschungsprojekte/projekt archiv/ethische-fragen-im-bereich-altersgerechterassistenzsysteme [Accessed: 04 May 2015].
  24. Marquardt, G. and Schmieg, P. (2009) Demenzfreundliche Architektur. Möglichkeiten der Unterstützung der räumlichen Orientierung in stationären Altenpflegeeinrichtungen. Zeitschrift für Gerontologie und Geriatrie, (42)5, 402-407.
  25. Mayring, P. (2008) Qualitative Inhaltsanalyse. Grundlagen und Techniken. Weinheim/Basel: Beltz.
  26. Mental Welfare Commission for Scotland. (2002) Good practice guide. Rights, risks and limits to freedom. Available at: http://www.mwcscot.org.uk/media/125247/rights_risk s_2013_edition_web_version.pdf. [Accessed: 07 February 2016].
  27. Moise, P., Schwarzinger, M., Um, M.Y. and the Dementia Experts' Group (2004) Dementia Care in 9 OECD Countries:A comparative Analysis. OECD HEALTH WORKING PAPERS Nr. 13. Available at: http://www.oecd.org/health/healthsystems/33661491.pdf [Accessed: 20 April 2016].
  28. Rasquin; S.M.C.; Willems, C.; de Vlieger, S.; Geers, R.P.J. & Soede, M. (2007). The use of technical devices to support outdoor mobility of dementia patients. Technology and Disability. 19(2-3). S. 113-120.
  29. Rialle, V., Ollivet, C., Guigui, C. and Hervé, C. (2009) What do family caregivers of Alzheimers disease patients desire in smart home technologies? Contrasted results of a wide survey. Available at: http://arxiv.org/pdf/0904.0437. [Accessed: 22 November 2015].
  30. Robinson, L., Brittain, K., Lindsay, S., Jackson, D. and Olivier, P. (2009) Keeping in Touch Everyday (KITE) project: developing assistive technologies with people with dementia and their carers to promote independence. International Psychogeriatrics, 21(3), 494-502.
  31. Robinson, L., Hutchinsons, D., Corner, L., Finch, T., Hughes, J., Brittain, K. and Bond, J. (2007a) Balancing rights and risks: Conflicting perspectives in the management of wandering in dementia. Health, Risk and Society, 9(4), 389-406.
  32. Robinson, L., Hutchings, D., Dickinson, H.O., Corner, L., Beyer, F., Finch, T., Hughes, J., Vanoli, A., Ballard, C. and Bond, J. (2007b) Effectiveness and acceptability of non-pharmacological interventions to reduce wandering in dementia: a systematic review. International Journal of Geriatric Psychiatry, 22(1), 9-22.
  33. Sackmann, A. & Weymann, A. (1994). Die Technisierung des Alltags. Generationen und technische Innovationen. Frankfurt: Campus.
  34. Schäufele, M., Köhler, L., Teufel, S. and Weyerer, S. (2005) Betreuung von demenziell erkrankten Menschen in Privathaushalten: Potenziale und GrenzeÀ In: U. Schneekloth and H.W. Wahl (eds.). Möglichkeiten und Grenzen selbständiger Lebensführung in privaten Haushalten (MUG III). Berlin: Bundesministerium für Familie, Senioren, Frauen und Jugend. 99-144.
  35. Schneekloth, U. and Wahl, H.W. (eds.) (2005) Möglichkeiten und Grenzen selbständiger Lebensführung in privaten Haushalten (MuG III). Repräsentativbefunde und Vertiefungsstudien zu häuslichen Pflegearrangements, Demenz und professionellen Versorgungsangeboten. Integrierter Abschlussbericht im Auftrag des Bundesministeriums für Familie, Senioren, Frauen und Jugend. Berlin: Bundesministerium für Familie, Senioren, Frauen und Jugend.
  36. Schnell, M.W. and Heinritz, C. (2006) Forschungsethik. Ein Grundlagen- und Arbeitsbuch für die Gesundheits- und Pflegewissenschaft. Bern: Huber.
  37. Sifton, C.B. (2011). Das Demenz Buch. Ein „Wegbegleiter“ für Angehörige, Pflegende und Aktivierungstherapeuten. [2. überarbeitete Aufl.]. Bern: Huber.
  38. Sposaro, F.; Banielson, J. & Tyson, G. (2010). iWander: An android application for dementia patients. Conference proceedings: Engineering in Medicine and Biology Society. S. 3875-3778. Doi: 10.1109/IEMBS.2010.5627669.
  39. Spring, H.J., Rowe, M.A. and Kelly, A. (2009) Improving Caregivers' Well-Being by Using Technology to Manage Nighttime Activity in Persons with Dementia. Research in Gerontological Nursing, 2(1), 39-48.
  40. Sütterlin, S., Hoßmann, I. and Klingholz, R. (eds.) (2011) Demenz-Report. Wie sich die Regionen in Deutschland, Österreich und der Schweiz auf die Alterung der Gesellschaft vorbereiten können. BerlinInstitut für Bevölkerung und Entwicklung. Köln: Gebrüder Kopp GmbH.
  41. Venkatesh, V. & Davis, F. D. (2000). A theoretical extension of the Technology Acceptance Model: Four longitudinal field studies. Management Science. 46(2). S. 186-204.
  42. Venkatesh, V. & Bala, H. (2008). Technology acceptance model 3 and a research agenda on interventions. Decision Sciences. 39(2). S. 273-315.
  43. Wigg, J. M. (2010) Liberating the wanderers: using technology to unlock doors for those living with dementia. Sociology of Health and Illness, 32(2), 288-303.
  44. Witzel, A. (2000) Das problemzentrierte Interview. Forum Qualitative Sozialforschung. Available at: http://www.qualitativeresearch.net/index.php/fqs/articl e/view/%201132/2519 [Accessed: 07 February 2016].
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Paper Citation


in Harvard Style

Müller I., Mertin M. and M.A. R. (2017). Technology as an Area of Conflict between Autonomy and Safety - Acceptance and Attitudes of Family Caregivers in Regard to Technical Assistance to Ensure Safe Areas of Movement for People with Dementia Diseases . In Proceedings of the 3rd International Conference on Information and Communication Technologies for Ageing Well and e-Health - Volume 1: ICT4AWE, ISBN 978-989-758-251-6, pages 127-134. DOI: 10.5220/0006283001270134


in Bibtex Style

@conference{ict4awe17,
author={Irene Müller and Matthias Mertin and Rolf M.A.},
title={Technology as an Area of Conflict between Autonomy and Safety - Acceptance and Attitudes of Family Caregivers in Regard to Technical Assistance to Ensure Safe Areas of Movement for People with Dementia Diseases},
booktitle={Proceedings of the 3rd International Conference on Information and Communication Technologies for Ageing Well and e-Health - Volume 1: ICT4AWE,},
year={2017},
pages={127-134},
publisher={SciTePress},
organization={INSTICC},
doi={10.5220/0006283001270134},
isbn={978-989-758-251-6},
}


in EndNote Style

TY - CONF
JO - Proceedings of the 3rd International Conference on Information and Communication Technologies for Ageing Well and e-Health - Volume 1: ICT4AWE,
TI - Technology as an Area of Conflict between Autonomy and Safety - Acceptance and Attitudes of Family Caregivers in Regard to Technical Assistance to Ensure Safe Areas of Movement for People with Dementia Diseases
SN - 978-989-758-251-6
AU - Müller I.
AU - Mertin M.
AU - M.A. R.
PY - 2017
SP - 127
EP - 134
DO - 10.5220/0006283001270134