Towards Dependable, Interoperable and Evolvable Personal Health Data Spaces Within the European Health Data Space

Gunnar Piho, Igor Bossenko, Marten Kask, Peeter Ross, Peeter Ross, Toomas Klementi

2025

Abstract

This paper examines the challenges and preliminary findings in developing a dependable, interoperable, and evolvable PHDS within the EHDS. The proposed architecture consolidates personal health data, including laboratory results, medical history, imaging, omic data, patient-reported outcomes, and wearable device data into an integrated master copy under individual control. It ensures seamless interoperability for primary use cases such as diagnosis and treatment and de-identified secondary uses such as research and AI, adhering to strict consent requirements. Dependability ensures data integrity, interoperability enables smooth data exchange, and evolvability allows adaptation to regulatory and technological changes. This framework enhances health data management, supports sustainable healthcare, and addresses key issues in ownership, security, and usability.

Paper Citation

in Harvard Style

Piho G., Bossenko I., Kask M., Ross P. and Klementi T. (2025). Towards Dependable, Interoperable and Evolvable Personal Health Data Spaces Within the European Health Data Space. In Proceedings of the 11th International Conference on Information and Communication Technologies for Ageing Well and e-Health - Volume 1: ICT4AWE; ISBN 978-989-758-743-6, SciTePress, pages 330-337. DOI: 10.5220/0013431000003938

in Bibtex Style

@conference{ict4awe25,
author={Gunnar Piho and Igor Bossenko and Marten Kask and Peeter Ross and Toomas Klementi},
title={Towards Dependable, Interoperable and Evolvable Personal Health Data Spaces Within the European Health Data Space},
booktitle={Proceedings of the 11th International Conference on Information and Communication Technologies for Ageing Well and e-Health - Volume 1: ICT4AWE},
year={2025},
pages={330-337},
publisher={SciTePress},
organization={INSTICC},
doi={10.5220/0013431000003938},
isbn={978-989-758-743-6},
}

in EndNote Style

TY - CONF

JO - Proceedings of the 11th International Conference on Information and Communication Technologies for Ageing Well and e-Health - Volume 1: ICT4AWE
TI - Towards Dependable, Interoperable and Evolvable Personal Health Data Spaces Within the European Health Data Space
SN - 978-989-758-743-6
AU - Piho G.
AU - Bossenko I.
AU - Kask M.
AU - Ross P.
AU - Klementi T.
PY - 2025
SP - 330
EP - 337
DO - 10.5220/0013431000003938
PB - SciTePress