APPLYING MEDICINE 2.0 TO THE I-CAN - Managing the Needs and Rights of End Users

Stephan Ruppert, Debbie Richards, Samuel Arnold, Vivienne Riches, Trevor Parmenter

2010

Abstract

This paper considers how Medicine 2.0 features can be added to an existing e-health application known as the I-CAN (Instrument for the Classification and Assessment of Support Needs). One of the biggest problems with a social networking feature based around health concerns is the issue of privacy. Even though participation is on a completely unsolicited, opt-in basis, there are access and privacy issues involved in such a tool. A preliminary design proposal is presented which takes into account the needs, responsibilities, rights and abilities of the (direct and indirect) users.

References

  1. Arnold, S, Riches, V, Parmenter, T & Stancliffe, R (2008), The I-CAN: Using e- Health to get People the Support they Need, Health Informatics Conference 2008, Melbourne.
  2. Frost, JH & Massagli, MP (2008), Social Uses of Personal Health Information Within PatientsLikeMe, an Online Patient Community: What Can Happen When Patients Have Access to One Another's Datá, J Med Internet Res 2008, 10(3):e15, viewed 22/12/2008, < http://www.jmir.org/2008/3/e15/>.
  3. I-CAN (2008), I-CAN Homepage, viewed 20/12/2008, <http://www.i- can.org.au/index.php>.
  4. Llewellyn, G., Riches, VC, Hindmarsh, GJ, Parmenter, TR & Chan, J (2005), I- CAN: Instrument to Classify Support Needs for People with DisabilitÉ, Faculty of Health Sciences, The University of Sydney, Centre for Development Disability Studies & The Royal Rehabilitation Centre, Sydney.
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Paper Citation


in Harvard Style

Ruppert S., Richards D., Arnold S., Riches V. and Parmenter T. (2010). APPLYING MEDICINE 2.0 TO THE I-CAN - Managing the Needs and Rights of End Users . In Proceedings of the 6th International Conference on Web Information Systems and Technology - Volume 2: WEBIST, ISBN 978-989-674-025-2, pages 144-149. DOI: 10.5220/0002844301440149


in Bibtex Style

@conference{webist10,
author={Stephan Ruppert and Debbie Richards and Samuel Arnold and Vivienne Riches and Trevor Parmenter},
title={APPLYING MEDICINE 2.0 TO THE I-CAN - Managing the Needs and Rights of End Users},
booktitle={Proceedings of the 6th International Conference on Web Information Systems and Technology - Volume 2: WEBIST,},
year={2010},
pages={144-149},
publisher={SciTePress},
organization={INSTICC},
doi={10.5220/0002844301440149},
isbn={978-989-674-025-2},
}


in EndNote Style

TY - CONF
JO - Proceedings of the 6th International Conference on Web Information Systems and Technology - Volume 2: WEBIST,
TI - APPLYING MEDICINE 2.0 TO THE I-CAN - Managing the Needs and Rights of End Users
SN - 978-989-674-025-2
AU - Ruppert S.
AU - Richards D.
AU - Arnold S.
AU - Riches V.
AU - Parmenter T.
PY - 2010
SP - 144
EP - 149
DO - 10.5220/0002844301440149